sherron0: (prozac)
Well, not any worse.

The allergist helped a little, I think.  The two nose sprays have improved breathing and cut out the strictly sinus headaches.  But I'm still getting 3-4 migraines a week. 

I saw a neurologist this week and he insisted that Topamax would be fine on top of the other psycho-active drugs I take, including Lamictal, which is a similar drug.  But that I could discuss it with my psychiatrist first before I fill the script.

I was not real impressed with the numbers on Topamax.  I quizzed the poor man unmercifully about other options, and there are no other "preventative" options, except drugs.  And they start with Topamax because it is the best drug.  Define best:  It works in 60% of patients, and of those 60%, they see a 50% - 75% reduction in the frequency and severity of the migraines. 

So, using the best case scenario with those numbers, I can go from 13-15 headaches a month to 4 - 5 headaches a month that the Maxalt alone will be able to handle.  I can live with that.  So I just have to hope that for once, I'm just typical and I'm in the 60%!


So I left him thinking that he just didn't appreciate the delicacy of brain chemistry, and I'm sure he thought I just didn't appreciate the robust flexibility of brains.

I actually saw Sophia (my psych) the very next day, and she said, "First, why don't we stop the Lamictal? While it does help most people with migraines, there is a certain small percentage of people that it actually gives migraines, and this wouldn't be the first time you've been in a 'small percentage' of people where a drug or side affect is concerned."  (For instance, I'm one of those VERY rare adults that gets the atypical reaction to benedryl that some kids get --It makes me hyper instead of drowsy.)  And it turns out, when we go back on the records, I've only been on Lamictal since about November, so the timing is right for it to be that too.  You have to step down, of course, although not as slowly as some drugs, so tonight will be my first no Lamictal night.  So then in about three weeks, if that's the cause, I should see reduction of the headaches.

Fingers crossed.

sherron0: (prozac)
Of course, everyone has a theory. 

My mother and my best friend are sure it it's menopause hormones.

oh yeah, there's got to be some sort of hormonal connection, because there always has been.  Until recently, the worst migraines I'd ever had were during pregnancy.   And I could basically depend on at least one a month, the day before my period would start.  I'm nearly 50, so I'm sneaking up on middle age, to say the least.  (But I am still having very regular periods, and all my hormone levels were some of the billion things they checked last week when they drew 5 vials of blood.  I was normal for the "pre-ovulatory" phase, which is dead on target according to my calendar.)

My mother had an early hysterectomy, but MamaCile, Aunt Katherine, and Aunt Robbie all had long, miserable, migraine-filled "changes."  I just hope that now, 60 years down the road from when Mamacile started going through it, that maybe we can do something else.  Or that there's some other, contributing factor than can be dealt with.

My latest contributing friend (everyone has an idea!) has me trying not to eat corn.  I know, it probably sounds ridiculous, but I've know just enough people over the years with corn/cornsyrup problems, and migraines and other similar symptoms to give it a try.  Why not.  My good friend Jean G. reminded me of her long and on-going migraine struggle, Maxalt, Topamax, B12, Vitamin D, other stuff.  But what finally helped was talking to another friend of ours, Ellen, whose younger sisters (twins) have this corn intolerance that was giving them migraines and the other assorted symptoms, similar to Jean, and me (mental fog, forgetfulness, achy joints, back, and neck, fatigue, etc).  So Jean went corn-free, which meant giving up Coke! Because it's high in high fructose corn syrup.  She feels much better, and the HAs are gone.  She's been able to narrow it down to just HFCS, in fact.  Like another friend of mine (Diane) who, since I've known her has been unable to eat anything with corn syrup in it. She's always had to cook for herself because so much packaged food has corn syrup in it. Jean buys her Coke now from the Mexican grocery, because Mexican Coke is still bottled with real sugar.  And she occasionally has Fritos, which don't have HFCS, but are corn, salt, and fat.  And that's all.  I eat them a lot, because my thyroid and adrenal problems make me crave salt, and I've been told to honor those cravings, they're something with only three, familiar ingredients. But I haven't had any for two days now.

I'm telling you, I'm desperate, I'm even to the point where if they told me exercise would help, I'd think about joining a stupid Gym!!

Oh, the allergist did prescribe me two nose sprays, an antihistimine and a topical cortisone, which , between them will probably help me breathe at least.

Part of me was hoping there would be allergies, and I'd have an excuse to free the doggies and get all hardwood floors!  Ah well.  I told that to the doc, and she said, "well, they're irritants, still. I wouldn't hurt." But I'd have to have a stronger argument than "wouldn't hurt."

And one friend sent my favorite so far, a link to a NY Times Health pages article on certain types of plastic surgery (forehead, temple, and back of the neck) seem to completely eliminate migraines for people whose HAs are triggered in those regions.  They've done a placebo study.  Some women got the special surgery that pads the nerves connected to migraines, some just got the regular plastic surgery.  The cure rate was 55% of the women had their HA completely eliminated.  Not "reduced." Gone. 

curiouser and curiouser

Well, I've got to get off to Walgreens before my afternoon slump, so later!
sherron0: (Default)
I've been trying to find a moment to write something, between headaches.  (both sinus and migraine, and sometimes migraine triggered by sinus, and sometimes I just wake up with both!)

I have some good things going on, Larry and I are finally getting serious and started on me being the N. AL branch office of L. I. Smith & Assoc.  I actually went to my first pre-bid meeting, and  got a very large company to ask us for bids (as subs) on two jobs here in Madison county that they are bidding on.  Pretty cool for my first time out.

Now if I just had more than two or three days a week where I felt human, I could probably go out and make some money!

I've been back to the doctor, who is sending me and my MRI to a neurologist, and also to an allergist to see if something might be done on that front to help my constant sinusitis. She also drew a couple of pints of blood to check everything you can check, from folate, to hormones, to thyroid, to Epstein-Barre, to calcium.  I also got new glasses yesterday.  I've been going to my chiropractor, who makes me feel better in my neck and back, but isn't actually helping the headaches.  I'm trying every thing on every front I can.

I also am making the permanent change to a nurse-practitioner in the office with a doctor I used to use years ago.  I had changed to another doctor who was more open to alternative medicine about 7 years ago, but she's cut back to being a part time doctor and moved to a clinic in another town, about 45 minutes away.  She's hard to get in to see, and the office is a nightmare to deal with.  So I'm back to my original doctor's office where I started out when I first moved to AL.  {Mark and the boys have stayed with her all this time.  Mark is not open to alternative medicine either, And none of the guys is hardly ever sick anyway.  The last time Thomas was at a doctor was for a physical, two years ago when we were jumping through all those hoops for DHR to become foster parents.  Before that, probably the physical for Boy Scout Camp.}  Anyway, the point is that she's changed me from the Armour Thyroid, which Armour is no longer making, and I was having to have compounded, and have been without for nearly three weeks, to Synthroid.  Which may at least help with how tired and cold I've been the last few weeks.

I'm getting demoralized about the whole thing, as you might imagine.

My life has turned into one of those "you had to be there" jokes.
sherron0: (Default)
So, I've just decided to become an alcoholic.

I've pretty much resigned myself to having a headache every day of my life, for at least part of the day, usually at least a dull ache all day.

But tonight, my darling really wanted a family meal. His family ate every meal together, every day. H detests the "modern American" family on the run every one eats separately meals. So he suggested that we go out tonight after he got back from church. He knows Thomas is ALWAYS up for any excuse to eat out, and that makes it two out of three agitating for a family meal. I bow to the majority and we go out to the newest branch of Casa Blanca, a decent Mexican restaurant around here. And I had a frozen Margarita. I am now exceedingly well-fed, and relaxed, and headache free. I'm thinking a daily margarita is an excellent idea.

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